Charlie Gard Saga Continues As Parents Seek Court Approval for Dying Wish

This is an undated hand out photo of Charlie Gard provided by his family, at Great Ormond Street Hospital, in London. The parents of a terminally-ill baby boy lost the final stage of their legal battle on Tuesday, June27, 2017 to take him out of a British hospital to receive treatment in the U.S., after a European court agreed with previous rulings that the baby should be taken off life support. (Family of Charlie Gard via AP)

Bringing a baby home from the hospital is a truly singular experience that is both exciting and nerve-wracking at the same time. For Charlie Gard’s parents, Chris Gard and Connie Yates, the experience will be vastly different from the excitement of bringing little Charlie home, if they’re allowed to.

Following Monday’s heartbreaking announcement from Charlie’s parents that the months long court battle to try to save Charlie had been the baby boy’s ultimate death sentence and that they had decided to end the fight and take Charlie off his ventilator, they’re now asking the courts to allow them to take him home for the first and only time.

Since the announcement, Gard and Yates have been in mediation with the Great Ormond Street Hospital (GOSH) to decide when and where Charlie’s final hours will occur. Charlie’s parents want him at home with them, while the barrister for GOSH argues that Charlie’s ventilator won’t fit through the front door of their home.

Of course, all of this is frustrating and heartbreaking as Charlie is going home to die the ventilator seems like the least important thing in this scenario. The Gard’s attorneys and palliative specialists say the boy would likely have six to seven hours at home before he passes away.

According to reports from the court, hospice is also being looked at as a viable option rather than at home or in the sterile, cold, and often noisy environment of a children’s hospital.

The court will rule on Wednesday.